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Hot Links: Other Special Needs

denotes sites the "Mothers with Attitude" editor uses regularly and particularly relies on.

CEREBRAL PALSY

Infant Development www.geocities.com/Heartland/Village/9021/development.html Brief descriptions of different types of cerebral palsy, from the flowery but info-packed KidPower site. • Get site info

DEVELOPMENTAL DELAYS AND DISABILITIES

Administration on Developmental Disabilities http://www.acf.dhhs.gov/programs/add/ Government site includes listings of state programs for the developmentally disabled. • Get site info

Developmental Delay Resources www.devdelay.org/ "A nonprofit organization dedicated to meeting the needs of those working with children who have developmental delays in sensory motor, language, social, and emotional areas." • Get site info

DOWN SYNDROME

Einstein Syndrome: Down Syndrome with a Positive Attitude www.einstein-syndrome.com "This site is written to bring hope, brought by moms who are changing the face of Down Syndrome. We share ideas, experience, and learning to help you reach for the stars with your child." • Get site info

Myths and Misconceptions www.pirchei.co.il/specl_ed/down/archives/myths.htm "Answers to the most common questions about Down's syndrome." • Get site info

FRAGILE X

FRAXA Research Foundation http://www.fraxa.org Information on Fragile X and support for research being done on treatments for it. • Get site info

Fragile X - Overview www.fpg.unc.edu/~fx/Pages/overvu.htm Comprehensive description of the genetic disorder on the Web site for the Carolina Fragile X Project. Other pages include case studies, publications and links. • Get site info

GIFTED AND TALENTED

GT World www.gtworld.org "An on-line support community for parents of Gifted and Talented children." Includes links, articles, and e-mail lists, including one for gifted and talented children with special needs. • Get site info

MEDICAL SPECIAL NEEDS

Brave Kids www.bravekids.org/index.html Help for children with chronic, life-threatening illnesses or disabilities. • Get site info

The Care Notebook www.cshcn.org/resources/CareNtbk.htm Downloadable forms for keeping track of children's special health-care needs. • Get site info

Hearts of Courage www.heartsofcourage.com Helping special-needs families lighten the load with useful information, support and resources. Also offers e-mail group and newsletter. • Get site info

Metabolic Disorders National Affiliation www.metdna.org This organization "has a mission to ensure that every child living with a metabolical disorder receives all the necessary treatment, medical equipment, medical supplies, and prescription drugs necessary to promote better life." • Get site info

TOURETTE SYNDROME

Tourette Syndrome "Plus" www.tourettesyndrome.net/behavior.htm Tourette site offers excellent series of articles on behavior management in schools appropriate to children with any neurological problems. I'm printing them out for my son's child study team pronto. • Get site info

MISCELLANEOUS

The Benign Congenital Hypotonia Site www.lightlink.com/vulcan/benign/ Lots of good information on low muscle tone. • Get site info

LPA Online www.lpaonline.org/ Official website of Little People of America, Inc., with organization news and dwarfism resources. • Get site info

Multiple Sclerosis Sucks www.multiplesclerosissucks.com MS with attitude. • Get site info

Muscular Dystrophy Campaign www.muscular-dystrophy.org/information/info.html 170 pages of fact sheets, research, and information on neuromuscular conditions. • Get site info

Viewpoint Mobility www.viewpointmobility.com Makers of Vision Vehicles, rear entrance lowered floor wheelchair accessible mini-van conversions. • Get site info

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